We are four young committed and motivated women who are all affected by a congenital heart defect. We do our best to organize an interesting, competent and effective conference, and have started our work in spring 2012.
Caroline Süess, 1976, graduate specialist in information research and library science
Conference and Leisure Programme
Contact for lecturer
Karin Christensen, 1977, M.A. in economics, University of St Gall, project manager
Finance, Accounting and Sponsoring
Contact for sponsors
Grace Schatz Di Girolamo, 1978, M.A. International Relations and International History, teacher in secondary school in French, English and History
Communication and Administration
Contact for delegates and media
Jolanda Niedermann, 1977, Study Nurse, Pneumology & Interdisziplinary Centre for Somnology, Canton Hospital St Gallen
Logistics, Accommodation and Medical Care
Contact for medical care staff and assistants
|left to right: Caroline Süess, Karin Christensen, Grace Schatz Di Girolamo, Jolanda Niedermann|
We are GUCHs, Grown-Ups with Congenital Heart defects. In 1999, we set up our own association in Switzerland, CUORE MATTO, which regularly organises meetings, lectures and seminars for its members who are all affected by a congenital heart defect.
At present, we have the great pleasure to be host of the EuroHearts Conference in Switzerland, the Tough Hearts Conference 2014 which started on July 20th 2014 and ended on Friday 25th 2014.
The Tough Hearts Conference 2014 takes place in Baar in the canton of Zug / Switzerland, and welcomes delegates from many different GUCH-organisations from Europe and around the world.
The Conference Programme includes interesting and informative lectures and round tables of GUCH-specialists and cardiologists, instructive workshops and exciting leisure activities. Being together with GUCHs from so many different places and backgrounds is essential and enriching for all of us.
Beside very concrete medical advice and news concerning GUCH-issues, the Tough Hearts Conference 2014 focuses on the dealing with constraints and sacrifice and the living with pain and emotional distress, all subjects which characterise a life with a congenital defect or disease. The importance of the doctor-patient-relationship and the fact that they learn from each other is also highlighted during this conference.
In addition, the Tough Hearts Conference 2014 is a jubilee conference as it is 20 years since it has taken place for the first time and 10 years for the last time in Switzerland.
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